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Heaven’s Next Star Performer March 27, 2017

Posted by Stella☆LunaC in Uncategorized.
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Cindy M. shared this memory with me this morning: 

“when a person has lived as long as Bob Peggy,  my mom & so many my others,  if they get hurt , it seems  to go down  hill  almost allwYs. I think they just don’t have it in fhem to recoup.  They’ve seen  it all,  done it all.  Their kids are grown & even have great grandkids.  That’s a really full,  happy life. Peggy was her own  kind of woman.  I’m gIad I grew up w them  for neighbors.  I’ll tell my mom today.  I’m not sure how but I will.  One of the block kids wrote me at like 1am,  we talked about our her skating. We use to have e a winter festival  for the neighborhood held at the Jr high where our ice rink was. One year Peggy was the entertainment.  They had music over loud speakers & she did her fancy ice capades skating. The song was “Poor Butterfly. ” she was amazing & then she fell. The ice was lumpy . She Hit her head & was out cold. The place was silent.  An ambulance came & got her. . Everyone clapped for her..

The song was very apropo.”

running out of hope…. August 23, 2015

Posted by Stella☆LunaC in Uncategorized.
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ON THIS DAY 2 YEARS AGO….

After 13 days of rigorous testing, treatments, IV drips and a 4th possible donor liver the previous evening, , our last dry run at UW Madison was a no go-we were running out of hope. I argued and pleaded with the doctors to find something, do anything to keep him. One. More. Day…..

As they gathered all his stuff, paperwork and prescriptions, I wondered what the hell I was going to do to get Mike back here, I nearly caved as they wheeled him down to the waiting car. Maybe I would pass out and end up in ER and they would have to keep him… pffft…

As the nurse loaded him back in the truck, I told her, “…I don’t know how I will get him back, he’s so weak. How will I get him back here….? She hugged us both wished us luck and said, “call an ambulance, get him to your hospital, we’ll get him here one way or the other…”

With my heart in the pit of my stomach,we spent the next 70 miles in silence as I drove Mike home to wait for one more call. At times I could barely see the road through my tears, and the futility of the situation we were in.

An hour and a half later, we made it home and it was all Mike could do to get upstairs and get to the couch. An hour later, his parents came to see how he was doing. They stayed for a couple hours, then with best wishes left us to try and rest from our long ordeal at UW.

Mike got up and went to the kitchen to make a bag of popcorn, hungry but not. It was just too much to think of all we had gone through, only to be sent back home again, to wait and wonder how long it would be before we ended up back in ER….

We didn’t have to wait long. The popcorn wasn’t even done when the phone rang. It was Aurora St. Luke’s Organ Procurement and they had a possible donor. They would call me back in 40 minutes to let us know when to come in….

As soon as I hung up with St. Luke’s, I called UW, they put me through the Transplant coordinator, and while I was on hold, UW Organ Procurement was calling me on the other end!!!!  I put the nurse on speakerphone, and called the neighbors to come over and help me get Mike downstairs and back in the truck for the ride back to UW. Mike asked the nurse if he could come back in the next morning, he had just made popcorn and really wanted to get a good nights sleep. She told him he really should come back in immediately, there was much prep to do, and he would get plenty of sleep at the hospital but he needed to come in NOW. When the neighbors arrived to help him downstairs, he had no choice but to go with them. SUCCESS WAS MINE!!!!

4.30 hours after we got home., we were heading back to UW. We arrived at 11pm and our world was changed forever.

Imma Gramma, and more UW shenanigans April 14, 2015

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I have sure missed posting lately….and it’s been bugging me. Lots has happened,  where to start,  to catch up….
So, I’ll start by introducing you to my new GrandIvaDaughterDaughter! Meet Aubrey LeAnn!
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She arrived March 25, nearly 2 weeks late.  She weighed in at 7lbs 13oz and Momma didn’t do epideral! Everyone is happy, healthy and home now,  and looking forward to holding my new GrandBabyGrrl :))
Made a hat for Aubrey, it fits!
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In other news, Mike went in for another hernia repair, same day Aubrey was making her grand entrance. I was between two worlds, happy for Nats, and nervous about Mike. Turns out his previous pre transplant umbilical hernia decided to undo itself from the inside. ….UGHS. Dr. D’Alessandro had to put another section of mesh in. Now Mike has a screen door, with a pet door added. 🙂
Jellyfish Man finds ways to entertain the staff.

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Doc said he saw another possible hernia issue in another spot (wound vac site), but did not want to risk another infection by creating another wound site. We go back April 23 for another consult about where we go next.

Then two weeks ago, I got a call at work from Mike’s sister, Mike was throwing up blood. I ran home and packed us in the truck for another trip to UW. Mike was in for 3 days, throwing up and not eating. They put him on anti nausea meds, which helped stop yhr heaves. They discovered a spot on the back of his thigh, found he had Cellulitis, a spot he didnt know was anything but a little irritating. They completed testing, found no cause for why he threw up blood, or the constant nausea,  then sent Mike home with antibiotics. The Cellulitis went away within a week, he’s done with the antibiotics,  and now we wait for our consultation.
Oyeah, and Spring has arrived. The deer are hungry, but left me a few Crocus’s

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Igor had a haircut recently, the jacket was necessary for chasing squirrels.

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Back to UW, 1 year later March 5, 2015

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Today we went back for a unexpected hernia repair, the second since Mike’s transplant. It was nearly a year ago March 13th 2014 when we had to come to UW Madison for a double incisional hernia operation
3 weeks ago Mike went to the ER complaining of nausea and vomiting. after labs were drawn they concluded that his liver numbers were good, his kidney function was good, and they could not explain his nausea and vomiting. The house Dr decided to do a CT scan to rule out any unforeseen problems. When he came back to tell us the results, we were surprised. 2 hernias apparently had developed, with no explanation or recall as to how or when they happened. We went home that day, with an appointment scheduled to see our surgeon dr. D’Alessandro. He confirmed there was something going on and send us home with instructions to wait for surgery to call us to schedule ASAP. They couldn’t get us in for another 3 weeks.
So when we went in today, we were very apprehensive about what dr would find when he finally got in to take a look. Mike’s surgery began at 2:18 pm today, so I went and grabbed a coffee and bag’o Sun Chips.

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Time went by fairly fast and it wasn’t long before I got the pager message that he was done and sent to recovery. By 5:30 p.m. the bulletin board indicated he was out of recovery and I was given his room number. I quickly ran out to the car and grabbed his overnight bag, he had left his laptop at home in anticipation of a rough night and felt he wouldn’t be able to deal with his laptop so soon after surgery.
We got to our room and got checked in with an evening nurse. they had him hooked up to an IV but they weren’t giving him any meds just yet, instead waiting for his anesthesia to wear off completely. He held up really well for the most part, feeling little discomfort. but by the time 7:30 rolled around, he was starting to feel a little uncomfortable. That’s when the nurse said she would recommend putting him on an IV drip for the night, just to be on the safe side. then she suggested that he try and get up for a walk around 10 p.m., he said he’d be glad to do it!
I was getting pretty tired and was immensely relieved that it was all over with, but not looking forward to the drive home, so I excused myself at 8:30 with a promise to call in as soon as I got home, and quickly headed back home.  I ran into one of our old nurses from the transplant days, Muface, from South Africa. he saw me and immediately asked what room Mike was in, I told him number 676. I got a quick hug before he dashed off to go look for Mike!
My daughter Natalie who is expecting her first baby any day now, kept me busy text messaging me via my earbud, to help the time go by. I never once had to look at my phone- I love my Plantronics ear bud!
I got home at exactly 10 o’clock, letting or out to potty and poop, then went back inside and called mike to let him know I was home.  He sounded in great spirits although he said he was starting to hurt a little bit, but he had gotten up and walked, with two nurses to assist! I’m pretty sure things were just slow tonight and they were both looking for something to do with Mike LOL!

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Nightime at UW Madison

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Mike’s room with a view of the Unitarian Church, a place he remembered from his HE days!
Now that this is all done, I am curled up with my buddy Igor on our pallet on the floor in the living room watching 12 O’Clock High on MeTV. It just feels right and I know Mike will be home before we know it!

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Igor is dealing with dad’s absence by stealing all the pillows from our temporary pallet on the living room floor
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Friends are like Snowflakes… April 9, 2014

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Linda Godfrey author of God Johnson; the Unforgiven Diary and I visited a really neat Woodworking shop run by John, in Burlington, Wisconsin. He has a large collection of Model Planes, Lionel Trains and Model Ships kits, accessories, beads, painting supplies and puzzles!!
This brings back memories…I remember Mom taking me to the airport to pick up my Daddy, when he returned from Germany.
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On the way back, we saw a sad sight…Frosty, out stranded in his field. 
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Where did all that snow go???
 
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I lost a dear friend yesterday. Sharon is the mother of my youngest daughter’s BFF. Taken from us by a sudden massive heart attack, gone too soon.
 

Sharon Ann Taylor
December 20, 1954 – April 8, 2014

Sharon Ann Taylor age 59 of Delavan, WI died unexpectedly at her home on Tuesday April 8, 2014. Sharon was born on December 20, 1954, daughter of the late Milford and Phyllis Leach. Sharon worked at Lakeland Healthcare Center of Elkhorn for nearly 35 years. Sharon is survived by her two children, Joshua (Janna) Merritt, and Brittany Taylor; Two sisters, Lorraine Lupo and Linda Wall; one brother, Ronald Leach; nieces and nephews, Tina, Keith, Christine, Sara, and Bart; and six great nieces and nephews. Sharon is preceded in death by her parents. A Visitation will be held for Sharon on Friday April 11, 2014 from 4pm to 6pm at Haase-Lockwood & Associates Funeral Homes and Crematory, 730 N. Wisconsin Street, Elkhorn, WI. A service will follow the Visitation at 6pm at the Funeral Home, officiated by Rev. Dr. Scott McLeod. In lieu of flowers, memorials can be made in Sharon’s name to the Vince Lombardi Cancer Clinic, W3985 County Road NN, Elkhorn, WI, 53121. An online guest registry can be found at http://www.haaselockwoodfhs.com. Haase-Lockwood & Associates Funeral Homes and Crematory of Elkhorn assisted the family with the arrangements.

I will miss you, Sharon. Brittany will be so lost, but we will keep watch over her for you.Image

Out and About, another Park Run, and a surprise on the way home! April 6, 2014

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Took the Boyz to Natureland Park, last Tuesday, Mike wanted to get his camera out and get some pictures. That park has definitely hooked him, I think 🙂

Mike was out of the car before I had it turned off! Unloaded Igor and off they both went!

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ImageThe weather was great, 48 F, a little nip in the air, the sun warmed us up. It just felt good to be out in the fresh air again.

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On the way back, we went around the lake, and found an old church we didn’t know about before. Heart Prairie extends all around the east end of Whitewater lakes, and finding a little church with a cemetery, was the cherry on top!

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Gravestones dating to the mid to late 1800’s stand as testimony to our Civil War dead and buried.Image

Ice on the inl etacross the road lingers; another couple weeks, it will all be a not so distant memory of what a long winter this was…

 

Thank You……. January 3, 2014

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I just want to say Thank you, wherever you are. Through all the twists and turns of this long rough year, I never stopped thinking about you. I wonder who you are, what were you like, what was your favorite food, your favorite song, your pet’s name, what color were your eyes, who is missing you on this peaceful night….Your light went out too soon, you were the same age as my husband. Now your light will continue to shine on, through him.
Sending prayers out to your family that they may find peace, comfort and good memories as they gather together to celebrate your life and ultimate gift.
You are a part of our family now too, forever….
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Open Letter to Bikers January 1, 2014

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Debra wrote:
I have had many thoughts roll thru my head today and I will admit several tears when I learned of a mom and dad loosing their son. I truly had to step away, because I know the pain, I know the darkness, I know…But then the smile and little arms of a another child came and so I realized that it is and has been one hell of a ride and I will ride this year out and I will ride just as hard maybe even harder next year, enough rambling. Happy New Years to All. Stay Safe, Be Humble, LIVE and be YOU… Much Love and Respect.
 
Dear Debra,
Ride not to forget, but to remember. Ride for Life won, lives lost, for broken lives and for wings received. Ride safe to ride another day. Ride safe, eyes wide open for loved ones still with us, because they need us here on earth.
I rode, against all my husband’s Drs’ advice, because he would need me when he came home, told me my “donorcycle” was only a vehicle for me to save someone else’s life if things went sideways.
With that in mind, I kept riding 120 miles round-trip to UW Madison hospital every day, always aware of the risks. We both survived; Mike got his liver transplant, I got my husband back 120 days later, on Dec. 22, 2013.

I will keep riding for LIFE.
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Day 54 post -TX October 15, 2013

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Oct. 15, 2013
Hubs is 7 weeks post-tx. He is still bedridden, his legs are useless from being sick so long, and now going through 2nd rejection period. The steroids along with fighting 3 weeks of CDiff and other GI infections, leaking bile duct, peritonitis, etc, are making him (and me) nuts! He is so depressed, emotional, sad, emotional, tragic, it is heartbreaking…
Sunday I visited with him for 8 hours, the longest we have been able to enjoy each other in weeks. He was in such a good mood, even took 4 phone calls from close friends he grew up with! (in retrospect, maybe he got feel-good overload) He was joking with the nurses, being a real sweetheart.
Most of the time, he wasn’t really connecting the dots, the hallucinations are freaky, bugs in his food, “not poppy seeds, they move all over the place…”, people in the room he talked to , they didn’t reply so he continued to talk to them, his humor throughout all that is amazing…
I got to see a Hoyer lift in action. It is used to get him in and out of bed, and into the shower.
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By 5pm Sundowners (we call it Moon-Pie), he had reached critical mass, had made up his mind he was coming home with me, so we could snuggle in our own bed, us and Igor. He got so unreasonable, the nurse had to come rescue me after she heard his outbursts at my trying to explain why he can’t leave just yet…

Everyone keeps telling us he was so sick pre-tx, it will take him a long time to recover, he won’t remember any of this (he remembers everything negative, not the positive, and is remorseful the next day) and they say they’ve seen it all before, and once the steroids are reduced, he will be back to himself one day like a light switch going on……I just want him to get better… this is so horrible…..

9-28-2013 September 28, 2013

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9-28-2013
Mike is back in the hospital.. the rehab center called me yesterday, he had a temp 100.8 and was delirious. He is stable now, temp came down after antibiotic IVs and more tests should tell where the infection is, maybe, or not. he went through similar the weekend before discharge. this is sucking really bad….