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Down the LTAC Road October 31, 2013

Posted by Stella☆LunaC in Mike's Big Adventure in Liver Transplant.
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Oct. 16 Mike was transferred from UW Hospital Madison to an LTAC (Long Term Acute Care) hospital a couple miles from UW Madison.
Select Specialty hospital is geared toward patients with complex care issues that require a longer rehab time.
Mike is currently undergoing Wound VAC therapy to help close an opening in his incision.
V.A.C.® Therapy for Wounds
Since its introduction in 1995 (U.S.) / 1994 (Europe), V.A.C.® Therapy has changed the way wounds are healed. With more published clinical evidence than any other form of Negative Pressure Wound Therapy, V.A.C.® Therapy has been selected as the treatment of choice for more than 7,000,000 wounds worldwide*.
V.A.C.® Therapy promotes wound healing through Negative Pressure Wound Therapy (NPWT). By delivering negative pressure (a vacuum) at the wound site through a patented dressing, this helps draw wound edges together, remove infectious materials and actively promote granulation.
Videos can be found on YouTube- Warning! Graphic content, proceed with a strong stomach!
Mike is currently undergoing mobility exercises to improve muscle tone and yesterday they got him up and sitting at the side of the bed! He is still very weak but is gradually making improvements 🙂
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Today is Halloween and our 11th anniversary! I’ve decorated Mike’s room for the occasion.
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Last Thursday I got him an iPad to help pass the time while I went out of town to my youngest son’s wedding. I am so glad I went, it was good to see friends and (ex) relatives I’ve missed seeing in over 15 years 🙂20131031-063344.jpg
Youngest daughter Nats decorated the cake!20131031-063438.jpg20131031-063451.jpg20131031-063503.jpg20131031-063515.jpg20131031-063529.jpg

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My two sons, Richard and Sam, the Happy Groom!

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Granddaughter Hayley, youngest daughter Natalie and Sam20131031-063730.jpg
The Reception

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Photo Op

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GrandDivaDaughter Rhonda, Daddy, Mommy, GrandMommy

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Breakfast with the Kids

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20131031-064651.jpgNatalie and Jake, decisions….

20131031-064922.jpgSaw some pretty kewl Halloween decor in IN!

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Mr. and Mrs. Johnston! 🙂

20131031-065143.jpgChiao, Indianapolis, until my next trip down! 🙂

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Day 54 post -TX October 15, 2013

Posted by Stella☆LunaC in Uncategorized.
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Oct. 15, 2013
Hubs is 7 weeks post-tx. He is still bedridden, his legs are useless from being sick so long, and now going through 2nd rejection period. The steroids along with fighting 3 weeks of CDiff and other GI infections, leaking bile duct, peritonitis, etc, are making him (and me) nuts! He is so depressed, emotional, sad, emotional, tragic, it is heartbreaking…
Sunday I visited with him for 8 hours, the longest we have been able to enjoy each other in weeks. He was in such a good mood, even took 4 phone calls from close friends he grew up with! (in retrospect, maybe he got feel-good overload) He was joking with the nurses, being a real sweetheart.
Most of the time, he wasn’t really connecting the dots, the hallucinations are freaky, bugs in his food, “not poppy seeds, they move all over the place…”, people in the room he talked to , they didn’t reply so he continued to talk to them, his humor throughout all that is amazing…
I got to see a Hoyer lift in action. It is used to get him in and out of bed, and into the shower.
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By 5pm Sundowners (we call it Moon-Pie), he had reached critical mass, had made up his mind he was coming home with me, so we could snuggle in our own bed, us and Igor. He got so unreasonable, the nurse had to come rescue me after she heard his outbursts at my trying to explain why he can’t leave just yet…

Everyone keeps telling us he was so sick pre-tx, it will take him a long time to recover, he won’t remember any of this (he remembers everything negative, not the positive, and is remorseful the next day) and they say they’ve seen it all before, and once the steroids are reduced, he will be back to himself one day like a light switch going on……I just want him to get better… this is so horrible…..

Fighting the good fight, time marches on… October 5, 2013

Posted by Stella☆LunaC in Mike's Big Adventure in Liver Transplant.
2 comments

I sit here with a nasty flu bug, UGH! I find myself wondering how long Mike’s recovery will take. It has been 6 weeks since his liver transplant, seems like an eternity…
Mike has faced a couple recent setbacks and has come out the other side, only to face yet more challenges. His latest challenge seems to be the most tenacious. He has been put in an isolated environment for 30 days until the danger is past.The barrage of antibiotics, steroids and other meds are also contributing to his slowed progress, and they keep assuring us he will come out of this, this is completely normal progress, we just have to be patient.
There will be a meeting with the Drs, hospital staff and family about continued healthcare plans, long range objectives and goals. We hope to have a clearer picture then.
What a struggle this has been for us all! Mike is worn out and tired of it all, but he’s actually making progress, even if he doesn’t see it. We will continue to be there for him; he has come so far and the end is on the horizon!

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