Back to UW, 1 year later March 5, 2015Posted by Stella☆LunaC in Uncategorized.
Tags: hernia, liverversary, transplant, UW Madison
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Today we went back for a unexpected hernia repair, the second since Mike’s transplant. It was nearly a year ago March 13th 2014 when we had to come to UW Madison for a double incisional hernia operation
3 weeks ago Mike went to the ER complaining of nausea and vomiting. after labs were drawn they concluded that his liver numbers were good, his kidney function was good, and they could not explain his nausea and vomiting. The house Dr decided to do a CT scan to rule out any unforeseen problems. When he came back to tell us the results, we were surprised. 2 hernias apparently had developed, with no explanation or recall as to how or when they happened. We went home that day, with an appointment scheduled to see our surgeon dr. D’Alessandro. He confirmed there was something going on and send us home with instructions to wait for surgery to call us to schedule ASAP. They couldn’t get us in for another 3 weeks.
So when we went in today, we were very apprehensive about what dr would find when he finally got in to take a look. Mike’s surgery began at 2:18 pm today, so I went and grabbed a coffee and bag’o Sun Chips.
Time went by fairly fast and it wasn’t long before I got the pager message that he was done and sent to recovery. By 5:30 p.m. the bulletin board indicated he was out of recovery and I was given his room number. I quickly ran out to the car and grabbed his overnight bag, he had left his laptop at home in anticipation of a rough night and felt he wouldn’t be able to deal with his laptop so soon after surgery.
We got to our room and got checked in with an evening nurse. they had him hooked up to an IV but they weren’t giving him any meds just yet, instead waiting for his anesthesia to wear off completely. He held up really well for the most part, feeling little discomfort. but by the time 7:30 rolled around, he was starting to feel a little uncomfortable. That’s when the nurse said she would recommend putting him on an IV drip for the night, just to be on the safe side. then she suggested that he try and get up for a walk around 10 p.m., he said he’d be glad to do it!
I was getting pretty tired and was immensely relieved that it was all over with, but not looking forward to the drive home, so I excused myself at 8:30 with a promise to call in as soon as I got home, and quickly headed back home. I ran into one of our old nurses from the transplant days, Muface, from South Africa. he saw me and immediately asked what room Mike was in, I told him number 676. I got a quick hug before he dashed off to go look for Mike!
My daughter Natalie who is expecting her first baby any day now, kept me busy text messaging me via my earbud, to help the time go by. I never once had to look at my phone- I love my Plantronics ear bud!
I got home at exactly 10 o’clock, letting or out to potty and poop, then went back inside and called mike to let him know I was home. He sounded in great spirits although he said he was starting to hurt a little bit, but he had gotten up and walked, with two nurses to assist! I’m pretty sure things were just slow tonight and they were both looking for something to do with Mike LOL!
Nightime at UW Madison
Mike’s room with a view of the Unitarian Church, a place he remembered from his HE days!
Now that this is all done, I am curled up with my buddy Igor on our pallet on the floor in the living room watching 12 O’Clock High on MeTV. It just feels right and I know Mike will be home before we know it!
Look Backs – A Day to Celebrate September 22, 2014Posted by Stella☆LunaC in Mike's Big Adventure in Liver Transplant.
Tags: birthday, liver transplant
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As we continue to move forward, another BIG DAY has come to a close, Mike’s Birthday! It is BIG, given that a year ago, we weren’t sure if we would see this day. Sure as the Sun comes up every morning, we are here, and that is cause for celebration!
While we try not to look back and dwell on those dark and frightening days, we can’t forget how we got here. With a healthy dose of Determination and a LOT of Believing, we can do anything!
Happy Birthday, Mike (and Deter)!
and then there will be 3!!!! August 22, 2014Posted by Stella☆LunaC in Baby Talk, Jake and Natalie.
Tags: Aliena Rose?, Baby Greenwood
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Yep, I’m going to be a GRANDMA again! Brat #4 is expecting her first Bebeh late Feb, early March. The happy couple just celebrated their 2nd anniversary June 28. Wowser what a ride this has been :)
Let the knit’n commence!!! Of course I have way too many project ideas, and not enough time. Bebeh Momma is already 3 months along, having just found out 2 weeks ago!
She just went for her 2nd prenatal visit, and got to hear the heartbeat, 180 bps!!!! hmmmmm, a girl, maybe, baby?
and a baby wash cloth.
whoohoo~really crusin’ here… HA! *snorts!
UW Madison, 1 year anniversary August 16, 2014Posted by Stella☆LunaC in Mike's Big Adventure in Liver Transplant.
Tags: UW Madison
It was exactly one year ago Aug. 13, 2013, when we stepped foot inside UW Madison Hospital for the first time; little did we know it was to become our new Home, with new extended Family. We picked the right place!
Today, we were coming back for our next routine post-op 3 month checkup. We left at precisely 8:33 am, and arrived at 10:10. Once inside, we went straight to Registration, then on to Labs. After labs were drawn, we headed down to the Transplant Clinic, only to find out Dr. Lucey was running a bit late….an hour and a half. So we decided to go visit the Cafeteria, Mike had never been before. It was a pleasant surprise to him, as we sat and enjoyed a Veggie Sub and Hot Italian Sub. NOMS!
We got done and headed over the the H elevators, a good hike across the “Main Street” level, and visited with some of our nurses on B4/6 Transplant wing. We had just stepped through the double doors “Hepa-filter in progress” when one of our dearest nurses, Erika with a K, came around the corner- her face literally lit up! Then Molly heard the commotion and joined in the melee, hugs all around!!!
Dentist David also found us, and had a good laugh at our recounting the night he patiently sat with Mike, swabbing his mouth and coaxing one of many thirst-quenching swabs from Mike’s locked jaws. (the night one wisdom tooth literally crumbled and was presented to us in a tiny tube.) We were so busy talking, we missed his photo-op, but the memories will last a lifetime :)
After teary goodbyes, we headed back to the clinic for the remainder of our visit, to see Dr. Lucey, our Hepatologist, and part of the Transplant Team.
Mike’s labs came back excellent, and had a very nice, educational chat with Dr. Lucey. While talking about Mike’s meds, Mike made a comment about leaving things along and not messing with Mother Nature…..to which Dr. Lucey promptly replied, “Mike, you were the Poster Child for messing with Mother Nature!”
After our chat, Susan Dillon, our Transplant Coordinator, presented us with our Followup to Life folder, congratulations, and our 1-year Transplant pins!
I put mine on my hat as soon as we walked in the door!
We will be back in 6 months for another checkup. Labs will be every 3 months now, and Mike lost 2 pills in his regiment, bringing his new total down to 9 Rx’s a day. YAY!!!
Meanwhile, we will be plugging ahead, looking for more things to enjoy. Mike is rebuilding our front steps, that became a larger project than anticipated, but he is tackling it with renewed vigor!
This huge mess is keeping him busy and out of the kitchen. PieMan was told he needs to lose a little weight…ONO!!!!
Door County Vacation at last! July 25, 2014Posted by Stella☆LunaC in Mike's Big Adventure in Liver Transplant.
Tags: Door County, Fish Creek
I never thought we’d see the day, and never stopped believing it would happen.
Today we drove up to Door County for a long overdue road trip. Mike is finally able to make the 4 hour ride.
Mike packed the truck while I finished dressing and we were out by 8:30 am.
Yep, there it is, the Knitting Bag. All. The. Way. In. The. Back.
Igor is not going to get it.
I started out and got us through the Milwaukee leg, then we switched in Grafton. We passed the worlds tallest flagpole in Sheboygen, there she flies in all her glory!
a sight we haven’t seen in a loooong time
What a day it’s been! We stopped in Fish Creek and saw Mike’s sister’s lot where they were supervising tree trimming before construction.
After a short break at the condo, we went up to the tip of the Thumb to Charlie’s Fish Shack in Gills Rock and got some smoked whitefish and ate at a local county park.
You never know what you’ll spot in Wisconsin, home of everything weird and BIG!
One BIG Gnome! And lots of Shipwreck reference signage
<img src="https://manyhorsesmane.files.wordpress.com/2014/07/20140725-235224-85944999.jpg" alt="20140725-235224-85944999.jpg"
Last stop, a Pioneer Cemetery and a quick stop for a look at the bay
Stellar Updates | Zymol Man Returns! July 11, 2014Posted by Stella☆LunaC in Mike's Big Adventure in Liver Transplant.
Tags: liver transplant, Mini-bike, rehabilitation, Zymol, Zymol Cleaner Wax
Happy July 4th (a bit later) The Fourth of July weekend was a huge success-4 couples from Chicago, old friends of Mike’s all came up to see him. Only one couple had already seen him post-transplant, so it was a grand reunion for everyone involved!
Pete and Roni had so generously gifted Mike a mini-motorcycle back when he was in the hospital in October of 2013. Mike was itching to get it running, but had problems with starting it, so it sat until now, unused and neglected. Well, I can’t say neglected; Mike did spend an afternoon waxing his new toy with his favorite product, Zymol Cleaner Wax! He just couldn’t figure out how to start the thing.
So, with a little help from his friends, they got it running and took turns around the block with it. When it came to Mike’s turn, all eyes were on him!
Never thought we’d see the day, never stopped BELIEVING it would happen!
A lot has happened since Mike’s liver transplant and homecoming on Dec. 22, 2013. He continues to improve more each day, and is as we speak, out on his rider mower for the 3rd time this season. It is something he spend literally months dreaming of doing again, and now he can!!!
I took on a job outside of our home-based business, to help defray some of the mounting medical bills. It’s not much, never seems like enough, but it helps. So, I must close for now, and get ready to leave for work, but will return tonight with more pictures and news!
Life is starting to look GOOD again!
Thanks to dear friend Rasa, for the lovely image. :)
All Aboard! This Train is pulling out of Domination Station April 24, 2014Posted by Stella☆LunaC in Mike's Big Adventure in Liver Transplant.
Tags: Aurora, Mike, mood swings
Whine and Cheese Fest
So my cholesterol is a tad up. That’s ok, I wasn’t worried, because I normally eat healthy when at all possible. I do “cheat” on occasion, who doesn’t?
I did a search for cholesterol-lowering foods, just to refresh my memory, and find that I’m already on the right track. What a surprise. I regularly snack on soy nuts, pumpkin seeds, and dried cranberries, and when I get hungry, granola in my plain low-fat yogurt is perfect. I am enjoying a newly acquired habit of collecting flavored teas, and am now up to 10 boxes of various flavors and makers.I have Sleepytime Sinus Soother, Sleepytime Echinacea *Note to Self: add Tension Tamer, Sleepytime Vanilla, White tea, Lemon Ginger, Black Forest, Black Cherry Berry, and 9 flavor Stash Sampler pack. That’s just to name a few. I still enjoy my pot of coffee in the morning, but am cutting back on the powdered creamer and using Natural in the Raw instead.
Now, I just have to stop craving McD’s whenever we go to Madison. Which is hardly ever. OK, scrap that idea. McD’s once every 3 months is allowed. If cheating is the culprit, I can deal with that.
In Other (Liver)News
I am not sure what is going on, but here’s the synopsis:
Monday labs, check. We came home and Mike discovered his rider mower battery was missing. I explained to him that his dad probably took it home last Fall, with the intention of replacing it with a new one. The battery charger might be with that. He went on a tangent about his Dad taking stuff and never returning it, and demanded I call his dad. I suggested he call and ask, since it’s “his” lawnmower (problem). He flat out refused and blamed me for things becoming missing.
Tuesday, go to Aurora Clinic to get Rx’s filled. I forgot them Monday.
Mike was in a nasty mood because we couldn’t find his battery charger still. Dinnertime, Mike continued to rant about how the mower worked perfectly fine before, and now his dad had basically ruined everything. I reminded him of how his dad was only trying to help us, beings Mike was sick all last year and in hospital more than home, AND in fact, shouldn’t have felt a need to help us, but did anyway. Mike insisted the mower was fine. I argued it wasn’t and explained how I had to help his dad, WITH A BAD HEART, push the mower back to the garage not once, but twice, once from the bottom of the hill out back. That did not even phase him, his dad was still at fault, and the rider still worked perfectly, last time he rode it. Which was 2 summers ago, but when I pointed that out, became another arguement about how it was not 2 years but one year. When he told me he knows more about mower engines than I do, his argument hit a brick wall. There are 3 things I do NOT respond well to: #1: being called a liar, and #2: being told I am not as smart as the other person. and #3: the ever-popular Fuck YOU and YOU can leave.
He proceeded to rant about how he said he spoke with his dad, saying I should know where the MIA battery charger is. And then proceeded to tell me that since I also lost his battery cover on his bike,(it fell off on the road the one and ONLY time I took it out for a ride last summer), he was going to take my battery cover off and put it on his bike. “If it was YOUR bike, you’d have bought a new one right away.” Wrong answer, to which I responded, “I don’t have the money for yours and certainly wouldn’t have the money for mine.” Off to the bedroom to rant, tell me to go fuck off, and on and on and on….. I slept out in the living room.
Wed. I got up and let Igor out, then on our way back inside, I made another sweep of the garage and found his battery charger, on a shelf that I would not normally put it on. Dad again. I placed it on the workbench, in plain view for Mike to see. When we got ready to leave, he either didn’t notice the battery charger on the workbench, or didn’t want to acknowledge it. He didn’t say anything,
We drove back to Aurora Clinic to pick up his Rx’s. On the way, Mike drove, seemed ok, chatty, his usual self. We were sitting at a 4-way stop, and he let the opposite driver go first. He sat there still, and the second driver waited, and waited. I looked over and he seemed distracted, so I asked what he was doing. No response, so I spoke his name, and he seemed to come out of his trance, saying the light was red still, and as I looked, he was referring to the light at the NEXT intersection. I felt we had just entered the Twilight Zone, and my nerves, along with my BP, jumped.
We got to the Clinic without any further incidents. I found out my Prograf drug savings card is only good for the name brand, Mike has been taking the generic. The new cost for the generic brand is $65 a month, so my cost would be $20 with insurance. OR I could get the Brand name, pay $10 plus the difference. OY VAY. We had to stop at Walgreens to pickup another Rx I had placed before we got the Aurora Rx card. Then I found out they want a Dr’s consent before they can dispense Mike’s Tacrolimus under the Brand name Prograf. “I’ll go home and call our Team and find out what we can do.” I spoke with Sue, and we bounced the mail-order idea around again as she made notes to call in new scripts for Prograf. Mike acting like nothing was wrong, so I relaxed and we fell back into our normal routine. Back to the bedroom last night, but didn’t sleep well. Again.
This morning, Mike got up, and I could sense immediately he was in a mood again. The cat meowed, he bitched her out. I didn’t say anything and went to get Igor’s coat from the closet and proceeded to put it on. In the next moment, both Igot and I were pushed rudely out of the way, nearly down the stairs, as Mike shoved past us. I said rather annoyed, “excuse us!”, and listened as he went on a tangent about us taking up the entire hallway. “You could have said something or waited.” got another fuckyou. I put my boots on and stated to no one in particular, “I’m done.” and was promptly yelled at from the bedroom that I could “get the hell out and leave”. Mike’s hearing is acutely selective, as usual.
Either we have a problem with LFN’s or this is the new normal.
Que Lurch voice, “Uuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuhhhhh….”
Tags: cranberry, nut bread
Sandra’s Cranberry Orange Banana Chocolate Walnut Bread
4 cups flour
1 1/2 cups sugar
1 1/2 tsp baking powder
1 1/2 tsp baking soda
pinch of salt
1/4 cup cocoa powder *optional
1 can whole cranberry sauce
1/4 cup oil
1/2 cup cran-cherry juice
1/2 cup orange juice
Mix all dry ingredients together, add banana, eggs and oil.
Divide into two 9×5 loaf pans.
Bake 350 for 1 hour. Test with toothpick in center should come out clean.
Remove from pans and cool on wire baking racks.
Money, a person’s worth, and stuff April 13, 2014Posted by Stella☆LunaC in Heart Notes, Mike's Big Adventure in Liver Transplant.
Tags: house, money, worth
Yesterday, I went to my daughter’s best friend’s mothers funeral. It was a beautiful day, and a big turnout, as Sharon was a CPN which came with much respect within the community. And understandably, she would leave behind a dark hole in the lives of those under her care at Lakeland Healthcare Center, in town. One Resident was brought in by one of its staff, to see her friend, a tiny elderly slip of a woman with a thin windbreaker and a baseball cap, wheelchair-bound. A few of her closest co-workers came to see her. Brittany had come over the afternoon before, just to get away and spend time with my youngest. Natalie and her hubs Jake drove up the night before, to be here for BT. It was good to see my Twins back together, Buds to the end. Brittany talked about some of her new responsibilities; it was terribly overwhelming for her to absorb all the technical details of managing her mother’s affairs. When she spoke, it was matter-of-fact, she talked about errands at the bank, taking some of her things from the house, to her brother’s in town. Natalie was a good listener. Brittany finally told Nats to make sure I made out a will, for any unforeseen event. Natalie responded by telling her she knew for a fact, she would get nothing, if anything were to happen to Mike, myself, or both of us. She said that Mike’s kids would come first, and she would get nothing. I assured her that she would receive things that my mother and dad had left. But when it came to the house, she flatly stated she would not be included in the distribution from any gain. It made me sick to hear this, to know how she was painfully aware of her status (and mine) within this family. We are not blood. When Mike was in the hospital recuperating from his liver transplant, things were not looking so well for him. He went through 1 rejection in the first 4 weeks post-op. They managed to stabilize his medications, telling us the whole while it was all a part of the recovery. Vitals and blood draws had to be taken constantly, 3 times a day, to monitor his levels. His meds were adjusted and we continued to watch for any signs of improvement. His Hepatic Encephalopathy had not cleared up yet, he was addled and confused, hallucinating and random fits of anger as he struggled to gain control back, and he was still unable to walk. 4 weeks after his surgery, he was transferred to a Nursing home. 4 days later he developed a raging fever and went back to the hospital to undergo another battery of medications and antibiotics to combat a 2nd rejection. We thought we were going to lose him, he was out of his mind in pain. His mother called one night, and we talked. I didn’t know what to tell her, as Mike was still not out of the woods yet. At one point in the conversation, she asked me what I would do if Mike did not come out of this. I told her I had not thought about anything but getting him through this, one way or the other. She seemed to doubt my conviction or to not understand it, and asked if I would want to go back to live with my kids. I told her that had not entered my mind, and I still felt I wanted to stay up here, regardless. This is my HOME, and I did not want to leave it. She backed down and let the subject die, and we talked a little while longer before she finally let me go. I feel like a stranger in my own home, no, NOT my own home, their house. It’s not mine anymore. I grieve silent, every time we pull into the driveway. I take Igor for walks, and when I remember the first time we laid eyes on the house, and how unbelievably lovely a place it was, I can’t stop the tears. It is not mine anymore, I am just taking up space in it. My dreams of growing comfortably old and at peace here, are just that, dreams. I feel empty and worthless now, that my time here is borrowed. I am just borrowing this place. I can’t even imagine how I will feel when our Igor has gone and I have no place to bury his ashes. I can’t lay him here and then leave him behind. I don’t know what I’ll do. Perhaps we won’t even be here when that day comes. I spent many nights alone here, my buddy at my side, unable to see any future, while Mike’s health declined. I didn’t know if he would survive to see a liver transplant. Then when he did get his donor liver, so many setbacks occurred and the future was still so far out of sight, the light at the end of the tunnel but a dim spot in the far ahead. As he lay in the hospital, his body fighting rejection, I fought my worst fear that after all we’d been trough, the fight to survive alcohol and liver disease, down to end-stage liver cirrhosis, I would end up alone, and then be turned out. Mike’s parents would take the house and their money back they had fronted 11 years ago. My worth was as plain as the writing on Mike’s daily bulletin board in his hospital room, daily reminders that things can change in the blink of an eye. Nothing is safe and secure, no matter how much or how little money we have, or how hard we worked to get here. I’ve seen the ugliness that comes with having possessions and money. It’s only stuff. We will survive, we always will. I just want to fly free as Hawk, soar on a current, no worries except where my next meal will come from. I will keep looking ahead, to the place where I belong.
Friends are like Snowflakes… April 9, 2014Posted by Stella☆LunaC in Uncategorized.
Tags: Burlington, Craft shop, model planes, puzzles, Sharon
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On the way back, we saw a sad sight…Frosty, out stranded in his field.
December 20, 1954 – April 8, 2014
Sharon Ann Taylor age 59 of Delavan, WI died unexpectedly at her home on Tuesday April 8, 2014. Sharon was born on December 20, 1954, daughter of the late Milford and Phyllis Leach. Sharon worked at Lakeland Healthcare Center of Elkhorn for nearly 35 years. Sharon is survived by her two children, Joshua (Janna) Merritt, and Brittany Taylor; Two sisters, Lorraine Lupo and Linda Wall; one brother, Ronald Leach; nieces and nephews, Tina, Keith, Christine, Sara, and Bart; and six great nieces and nephews. Sharon is preceded in death by her parents. A Visitation will be held for Sharon on Friday April 11, 2014 from 4pm to 6pm at Haase-Lockwood & Associates Funeral Homes and Crematory, 730 N. Wisconsin Street, Elkhorn, WI. A service will follow the Visitation at 6pm at the Funeral Home, officiated by Rev. Dr. Scott McLeod. In lieu of flowers, memorials can be made in Sharon’s name to the Vince Lombardi Cancer Clinic, W3985 County Road NN, Elkhorn, WI, 53121. An online guest registry can be found at http://www.haaselockwoodfhs.com. Haase-Lockwood & Associates Funeral Homes and Crematory of Elkhorn assisted the family with the arrangements.